Sensitive Data Donation: A Feminist Reframing of Data Practices for Intimate Research Contexts
Alejandra Gómez Ortega, Jacky Bourgeois, Gerd Kortuem
Abstract
Data donation is an emerging practice for collecting personal data. However, recent data donation approaches are insufficient in intimate research contexts as they perceive data as neutral and objective and do not consider the contexts where data is generated and shaped nor offer choices beyond whether to disclose data. In this paper, we investigate how Data Feminism can inform an alternative form of data donation and propose the Sensitive Data Donation (sDD) method. It recognizes the sensitive nature of data and assumes the importance of situating and contextualizing it through balanced participation from donors, either as contributors, collaborators, or co-creators. To develop the method, we conduct a scoping literature review where we conceptualize data donation theories and practices. These serve as a base to critique recent approaches and propose an alternative: sDD. It comprises five principles integrated into a five-phase approach. We conclude by discussing its limitations and future challenges.