How to Talk to Children and Adolescents With Cancer About Spirituality? Establishing a Conversation Model
Willyane de Andrade Alvarenga, Ana Carolina Andrade Biaggi Leite, Amanda Aparecida Menochelli, Rebecca Ortiz La Banca, Paula Saud De Bortoli, Rhyquelle Rhibna Neris, Lucila Castanheira Nascimento
Abstract
Talking to children and adolescents with cancer about spirituality is a challenge. This study aimed to develop and evaluate a conversation model for a spiritual approach with children and adolescents with cancer. It was a methodological study with a systematic approach in three stages: (a) review of the literature for the selection of photographs and guiding questions, (b) using an expert committee to evaluate photographs and preselected questions, and (c) cognitive interview with children and adolescents to test the methodology. The expert committee evaluated and selected 20 photos and their respective guiding questions. Fifteen children and adolescents hospitalized with cancer tested the spirituality conversation model and expressed feelings, values, beliefs, fears, and the meaning they give to life and illness. The implementation of the conversation model can contribute both to the clinical practice, facilitating care for the spiritual dimension of pediatric patients, and to qualitative research on spirituality involving children.