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Video Intervention and Goals-of-Care Documentation in Hospitalized Older Adults

Angelo E. Volandes, Sophia N. Zupanc, Joshua R. Lakin, Howard Cabral, Edith Burns, Maria Torroella Carney, Santiago Lopez, Jennifer Itty, Kaitlin Emmert, Narda J. Martin, Therese Cole, Alexandra Dobie, Traci Cucinotta, Milton Joel, Lisa B. Caruso, Lori Henault, Julianne Dugas, Kristina Astone, Michael Winter, Na Wang, Aretha Delight Davis, Cynthia Garde, Perla Macip Rodriguez, Areej El‐Jawahri, Edward T. Moseley, Sophiya Das, Kate Sciacca, Ana María Ramírez, Valeria Gromova, Sherene Lambert, Shreya Sanghani, Charlotta Lindvall, Michael K. Paasche‐Orlow

2023JAMA Network Open24 citationsDOIOpen Access PDF

Abstract

Importance: Despite the benefits of goals-of-care (GOC) communication, many hospitalized individuals never communicate their goals or preferences to clinicians. Objective: To assess whether a GOC video intervention delivered by palliative care educators (PCEs) increased the rate of GOC documentation. Design, Setting, and Participants: This pragmatic, stepped-wedge cluster randomized clinical trial included patients aged 65 years or older admitted to 1 of 14 units at 2 urban hospitals in New York and Boston from July 1, 2021, to October 31, 2022. Intervention: The intervention involved PCEs (social workers and nurses trained in GOC communication) facilitating GOC conversations with patients and/or their decision-makers using a library of brief, certified video decision aids available in 29 languages. Patients in the control period received usual care. Main Outcome and Measures: The primary outcome was GOC documentation, which included any documentation of a goals conversation, limitation of life-sustaining treatment, palliative care, hospice, or time-limited trials and was obtained by natural language processing. Results: A total of 10 802 patients (mean [SD] age, 78 [8] years; 51.6% male) were admitted to 1 of 14 hospital units. Goals-of-care documentation during the intervention phase occurred among 3744 of 6023 patients (62.2%) compared with 2396 of 4779 patients (50.1%) in the usual care phase (P < .001). Proportions of documented GOC discussions for Black or African American individuals (865 of 1376 [62.9%] vs 596 of 1125 [53.0%]), Hispanic or Latino individuals (311 of 548 [56.8%] vs 218 of 451 [48.3%]), non-English speakers (586 of 1059 [55.3%] vs 405 of 863 [46.9%]), and people living with Alzheimer disease and related dementias (520 of 681 [76.4%] vs 355 of 570 [62.3%]) were greater during the intervention phase compared with the usual care phase. Conclusions and Relevance: In this stepped-wedge cluster randomized clinical trial of older adults, a GOC video intervention delivered by PCEs resulted in higher rates of GOC documentation compared with usual care, including among Black or African American individuals, Hispanic or Latino individuals, non-English speakers, and people living with Alzheimer disease and related dementias. The findings suggest that this form of patient-centered care delivery may be a beneficial decision support tool. Trial Registration: ClinicalTrials.gov Identifier: NCT04857060.

Topics & Concepts

DocumentationIntervention (counseling)Palliative careMedicineRandomized controlled trialFamily medicinePsychologyNursingSurgeryComputer scienceProgramming languagePalliative Care and End-of-Life IssuesPatient-Provider Communication in HealthcarePatient Dignity and Privacy