Mental health professional perspectives on health data sharing: Mixed methods study
Adela Grando, Julia Ivanova, Megan Hiestand, Hiral Soni, Anita Murcko, Michael J. Saks, David R. Kaufman, Mary Jo Whitfield, Christy Dye, Darwyn Chern, Jonathan Maupin
Abstract
This study explores behavioral health professionals' perceptions of granular data. Semi-structured in-person interviews of 20 health professionals were conducted at two different sites. Qualitative and quantitative analysis was performed. While most health professionals agreed that patients should control who accesses their personal medical record (70%), there are certain types of health information that should never be restricted (65%). Emergent themes, including perceived reasons that patients might share or withhold certain types of health information (65%), care coordination (12%), patient comprehension (11%), stigma (5%), trust (3%), sociocultural understanding (3%), and dissatisfaction with consent processes (1%), are explored. The impact of care role (prescriber or non-prescriber) on data-sharing perception is explored as well. This study informs the discussion on developing technology that helps balance provider and patient data-sharing and access needs.