Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening
Melissa Raspa, Oksana Kutsa, Sara M. Andrews, Angela Gwaltney, Erin Mallonee, Alissa Creamer, Paul K. J. Han, Barbara B. Biesecker
Topics & Concepts
WorryGriefAnxietyAngerPsychologySevere combined immunodeficiencyCoping (psychology)FeelingClinical psychologyPsychotherapistMedicinePsychiatryDevelopmental psychologyPediatricsSocial psychologyBiochemistryGeneChemistryImmunodeficiency and Autoimmune DisordersCystic Fibrosis Research AdvancesEthics and Legal Issues in Pediatric Healthcare