Towards advancing Out-of-Hospital cardiac arrest (OHCA) registries globally: Considerations from the global OHCA registry (GOHCAR) collaborative
Fahad Javaid Siddiqui, Bryan McNally, Jan‐Thorsten Gräsner, Andrew Fu Wah Ho, Ingvild Tjelmeland, Taku Iwami, Janet Bray, Jan Wnent, Shir Lynn Lim, Pin Pin Pek, Sang Do Shin, Marcus Eng Hock Ong, Fahad Javaid Siddiqui, Bryan McNally, Jan-Thorsten Gräsner, Andrew Fu-Wah Ho, Ingvild Tjelmeland, Taku Iwami, Janet Bray, Jan Went, Shir Lynn Lim, Pin Pin Pek, Sang Do Shin, Nan Liu, Gavin D. Perkins, Alexander White, Judith Finn, Karen Smith, Paul Chan, Jo Kramer-Johansen, Takashi Tagami, Marcus Eng Hock Ong
Abstract
A growing number out-of-hospital cardiac arrest (OHCA) registries have been developed across the globe. A few of these are national, while others cover larger geographical regions. These registries have common objectives; continuous quality improvement, epidemiological research and providing infrastructure for clinical trials. OHCA registries make performance comparison across Emergency Medical Services systems possible for benchmarking, hypothesis generation and further research. Changes in OHCA incidence and outcomes provide insights about the effects of secular trends or health services interventions. These registries, therefore, have become a mainstay of OHCA management and research. However, developing and maintaining these registries is challenging. Coordination of different service providers to support data collection, sustainable resourcing, data quality and data security are the key challenges faced by these registries. Despite all these challenges, noteworthy progress has been made and further standardization and co-ordination across registries can result in great international benefit. In this paper we present a 'why' and 'how to' model for setting up OHCA registries, and suggestions for better international co-ordination through a Global OHCA Registries Collaborative (GOHCAR). We draw together the knowledge of a cohort of international researchers, with experience and expertise in OHCA registry development, management, and data synthesis.