Toward Better Understanding of Pediatric Feeding Disorder
William G. Sharp, Alan H. Silverman, Joan C. Arvedson, Nancy F. Bandstra, Elizabeth Clawson, Rashelle C. Berry, Barbara O. McElhanon, Alison M. Kozlowski, Mitchell Katz, Valerie M. Volkert, Praveen S. Goday, Colleen Taylor Lukens
Abstract
To establish a foundation for methodologically sound research on the epidemiology, assessment, and treatment of pediatric feeding disorder (PFD), a 28-member multidisciplinary panel with equal representation from medicine, nutrition, feeding skill, and psychology from seven national feeding programs convened to develop a case report form (CRF). This process relied upon recent advances in defining PFD, a review of the extant literature, expert consensus regarding best practices, and review of current patient characterization templates at participating institutions. The resultant PFD CRF involves patient characterization in four domains (ie, medical, nutrition, feeding skill, and psychosocial) and identifies the primary features of a feeding disorder based on PFD diagnostic criteria. A corresponding protocol provides guidance for completing the assessment process across the four domains. The PFD CRF promotes a standard procedure to support patient characterization, enhance methodological rigor, and provide a useful clinical tool for providers and researchers working with these disorders.