Litcius/Paper detail

Navigating data standards in public health: A brief report from a data-standards meeting

Heather Hufstedler, Yannik Roell, Andressa Peña, Ankur Krishnan, Ian Green, Adriano Barbosa-Silva, Andreas Kremer, Clair Blacketer, Isabel Fortier, Kit Howard, Bess LeRoy, Eza Hafeza, David Baorto, Morris A. Swertz, Lauren Maxwell, Thomas Jaenisch

2024Journal of Global Health15 citationsDOIOpen Access PDF

Abstract

Data standardization offers significant benefits for industry and regulators alike, suggesting that it should be easy. In practice, however, the process has been hard and slow moving. Moving from an abstract incentive-based analysis to one focused on institutional detail reveals myriad frictions favoring the status quo despite foregone gains – Richard Berner and Kathryn Judge […]

Topics & Concepts

InteroperabilitySNOMED CTHealth dataData scienceFoundation (evidence)Public healthComputer scienceMedicineWorld Wide WebTerminologyHealth carePolitical scienceNursingLawLinguisticsPhilosophyEthics in Clinical ResearchResearch Data Management PracticesData-Driven Disease Surveillance