Creating a data commons: The INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT)
Kirk D. Wyatt, Suzi Birz, Douglas S. Hawkins, Véronique Minard‐Colin, David A. Rodeberg, Monika Sparber‐Sauer, Gianni Bisogno, Ewa Kościelniak, Gian Luca De Salvo, Martin Ebinger, Johannes H. M. Merks, Suzanne L. Wolden, Wei Xue, Samuel L. Volchenboum
Abstract
In this article, we will discuss the genesis, evolution, and progress of the INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT), which aims to foster international research and collaboration focused on pediatric soft tissue sarcoma. We will begin by highlighting the current state of clinical research for pediatric soft tissue sarcomas, including rhabdomyosarcoma and non-rhabdomyosarcoma soft tissue sarcoma. We will then explore challenges and research priorities, describe the development of INSTRuCT, and discuss how the consortium aims to address key research priorities.