How Should Biobanking Be Governed in Low-Resource Settings?
Aminu Yakubu, Nchangwi Syntia Munung, Jantina de Vries
Abstract
Development of biobanks in Africa raises ethical questions related to particular features of African cancer research contexts, such as underresourced health care and research infrastructures and low-average research literacy. This article describes ethical challenges of informed consent, benefit sharing, and stigmatization and proposes navigating these challenges by developing a comprehensive governance framework to ensure African leadership in biobanking research programs in Africa.
Topics & Concepts
BiobankResource (disambiguation)BusinessEnvironmental resource managementComputer scienceEnvironmental scienceBiologyBioinformaticsComputer networkEthics in Clinical ResearchBiomedical Ethics and RegulationGenomics and Rare Diseases