Litcius/Paper detail

Sharing Health Data and Biospecimens with Industry — A Principle-Driven, Practical Approach

Kayte Spector‐Bagdady, Raymond J. Hutchinson, Erin O. Kaleba, Sachin Kheterpal

2020New England Journal of Medicine20 citationsDOI

Abstract

Regulations give substantial discretion to individual organizations when it comes to sharing deidentified data and specimens with outside entities. Academic medical centers are practically and ethically compelled to establish best practices for such sharing.

Topics & Concepts

Data sharingDiscretionMedicineMEDLINEData scienceAlternative medicineComputer sciencePathologyPolitical scienceLawEthics in Clinical ResearchBiomedical Ethics and RegulationIntellectual Property and Patents