The European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS): benefits for patients, families, and health care providers
Manon Engels, Katarzyna Urbańczyk, Jurriaan Hölzenspies, Claas Röhl, N.A. Geverink, Nicoline Hoogerbrugge
Abstract
The European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS) established in 2017 and connecting more than 50 European expert centres improves access to diagnosis, treatment, and the provision of high-quality healthcare for patients with rare genetic tumour risk syndromes (hereditary cancer), no matter where they live in Europe.
Topics & Concepts
MedicineEpidemiologyHealth carePublic healthGenetic testingHuman geneticsFamily medicineGenetic syndromesGenetic counselingGenetic epidemiologyPediatricsEnvironmental healthIntensive care medicinePathologyInternal medicineGeneticsPolitical scienceBiologyGeneLawBRCA gene mutations in cancerGenetic factors in colorectal cancerGenomics and Rare Diseases