Screening for pulmonary and brain vascular malformations is the North American standard of care for patients with hereditary hemorrhagic telangiectasia (HHT): A survey of HHT Centers of Excellence
Alexandra Kilian, Marianne S. Clancy, Scott E. Olitsky, James R. Gossage, Marie E. Faughnan
Abstract
Keywords arteriovenous malformation, cerebral, hereditary hemorrhagic telangiectasia (HHT), pulmonary, screening, rare diseases
Topics & Concepts
MedicineTelangiectasiaExcellenceACVRL1PediatricsInternal medicineSurgeryEndoglinGeneticsPolitical scienceLawStem cellCD34BiologyVascular Anomalies and TreatmentsVascular Malformations Diagnosis and TreatmentTracheal and airway disorders