Health-related quality of life of adults with spinal muscular atrophy: insights from a nationwide patient registry in Germany
Erik Landfeldt, Berenike Leibrock, Justine Hussong, Simone Thiele, Maggie C. Walter, Eva Moehler, Michael Zemlin, Ulrich Dillmann, Marina Flotats‐Bastardas
Topics & Concepts
Spinal muscular atrophyPublic healthQuality of Life ResearchQuality of life (healthcare)MedicineGerontologyHealth related quality of lifePathologyDiseaseNursingNeurogenetic and Muscular Disorders ResearchCardiomyopathy and Myosin StudiesMuscle Physiology and Disorders