Guideline “Parkinson’s disease” of the German Society of Neurology (Deutsche Gesellschaft für Neurologie): concepts of care
Lars Tönges, Carsten Buhmann, Carsten Eggers, Stefan Lorenzl, Tobias Warnecke, for the German Parkinson Guideline Group, Mathias Bähr, Jos Becktepe, Daniela Berg, Kathrin Brockmann, Andrés Ceballos-Baumann, Joseph Claßen, Cornelius Deuschl, Günther Deuschl, Richard Dodel, Georg Ebersbach, Thilo van Eimeren, Alessandra Fanciulli, Bruno Fimm, Ann‐Kristin Folkerts, Madeleine Gausepohl, Alkomiet Hasan, Wiebke Hermann, Rüdiger Hilker-Roggendorf, Günter U. Höglinger, Matthias Höllerhage, Franziska Hopfner, Wolfgang H. Jost, Elke Kalbe, Jan Kassubek, Stephan Klebe, Christine Klein, Martin Klietz, Thomas Köglsperger, Andrea A. Kühn, Paul Krack, Florian Krismer, Gregor Kuhlenbäumer, Johannes Levin, Inga Liepelt‐Scarfone, Paul Lingor, Kai F. Loewenbrück, Matthias Löhle, Sylvia Maaß, Walter Maetzler, Regina Menzel, Philipp T. Meyer, Brit Mollenhauer, Manuela Neumann, Per Odin, Tiago F. Outeiro, Monika Pötter‐Nerger, René Reese, Kathrin Reetz, Olaf Rieß, Viktoria Ruf, Anja Schneider, Christoph Schrader, Alfons Schnitzler, Klaus Seppi, Friederike Sixel‐Döring, Alexander Storch, Claudia Trenkwalder, Thilo van Eimeren, Uwe Walter, Tobias Wächter, Florian Wegner, Christian Winkler, Karsten Witt, Dirk Woitalla, Kirsten E. Zeuner
Abstract
INTRODUCTION: In 2023, the German Society of Neurology published a new guideline on Parkinson's disease. An important section dealt with PD care concepts, which represent a particularly dynamic field of PD research, including their implementation in clinical practice. Parkinson's disease is the second most common age-associated neurodegenerative disease. Current estimates of the number of cases in the population describe a significant increase in prevalence in Germany by 2030 with higher proportions in rural areas, which also have a lack of sufficient PD care resources. RECOMMENDATIONS: In comparison with other international guidelines, which have so far mentioned palliative care and Parkinson's nurses in particular, the German S2k guideline expands the recommended concepts of PD care to include PD day clinics, inpatient complex treatment, and PD networks. CONCLUSION: Concepts of PD care guidelines are necessary because of the complex and rapidly evolving field of PD care provision. If applied appropriately, the potential for optimized care can be exploited and both the patient burden and the economic burden can be reduced. Given that modern care concepts have so far only been applied in a few regions, it is often impossible to generate broad evidence-based data, so that the evaluation of PD care concepts is partly dependent on expert opinion.