Tasks and interfaces in primary and specialized palliative care for Duchenne muscular dystrophy – A patients’ perspective
Maria Janisch, Kristin Boehme, Simone Thiele, Annette Bock, Janbernd Kirschner, Ulrike Schara, Maggie C. Walter, Silke Nolte-Buchholtz, Maja von der Hagen
Topics & Concepts
Palliative careDuchenne muscular dystrophyMedicineAdvance care planningCurative careDiseasePrimary careAmbulatory careFamily medicineNursingHealth carePathologyEconomicsEconomic growthInternal medicineChildhood Cancer Survivors' Quality of LifePalliative Care and End-of-Life IssuesIntensive Care Unit Cognitive Disorders