Personal data usage and privacy considerations in the COVID-19 global pandemic
Bethânia de Araújo Almeida, Danilo Doneda, Maria Yury Ichihara, Manoel Barral‐Netto, Gustavo Corrêa Matta, Elaine Teixeira Rabello, Fábio Castro Gouveia, Maurício L. Barreto
Abstract
Data has become increasingly important and valuable for both scientists and health authorities searching for answers to the COVID-19 crisis. Due to difficulties in diagnosing this infection in populations around the world, initiatives supported by digital technologies are being developed by governments and private companies to enable the tracking of the public’s symptoms, contacts and movements. Considering the current scenario, initiatives designed to support infection surveillance and monitoring are essential and necessary. Nonetheless, ethical, legal and technical questions abound regarding the amount and types of personal data being collected, processed, shared and used in the name of public health, as well as the concomitant or posterior use of this data. These challenges demonstrate the need for new models of responsible and transparent data and technology governance in efforts to control SARS-COV2, as well as in future public health emergencies.