Self-reported baseline phenotypes from the International Fibrodysplasia Ossificans Progressiva (FOP) Association Global Registry
Robert J. Pignolo, Kin Jip Cheung, Sammi Kile, Mary Anne Fitzpatrick, Carmen De Cunto, Mona Al Mukaddam, Edward C. Hsiao, Geneviève Baujat, Patricia Delai, Elisabeth M. W. Eekhoff, Maja Di Rocco, Zvi Grunwald, Nobuhiko Haga, Richard Keen, Benjamin Lévi, Rolf Morhart, Christiaan Scott, Adam Sherman, Keqin Zhang, Frederick S. Kaplan
Topics & Concepts
Fibrodysplasia ossificans progressivaMedicineHeterotopic ossificationPatient-Reported Outcomes Measurement Information SystemPopulationClinical trialPhysical therapyInternal medicineSurgeryEnvironmental healthComputerized adaptive testingClinical psychologyPsychometricsHeterotopic Ossification and Related ConditionsMedical Imaging and Pathology StudiesParathyroid Disorders and Treatments