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What makes a patient ready for Shared Decision Making? A qualitative study

Sascha M. Keij, Nanny van Duijn‐Bakker, Anne M. Stiggelbout, Arwen H. Pieterse

2020Patient Education and Counseling88 citationsDOIOpen Access PDF

Abstract

OBJECTIVES: Shared decision making (SDM) requires an active role from patients, which might be difficult for some. We aimed to identify what patients need to be ready (i.e., well-equipped and enabled) to participate in SDM about treatment, and what patient- and decision-related characteristics may influence readiness. METHODS: We conducted semi-structured interviews with patients and professionals (physicians, nurses, general practitioners, and researchers). Interviews were analyzed inductively. RESULTS: We identified five elements of patient readiness: 1) understanding of and attitude towards SDM, 2) health literacy, 3) skills in communicating and claiming space, 4) self-awareness, and 5) consideration skills. We identified 10 characteristics that may influence elements of readiness: 1) age, 2) cultural background, 3) educational background, 4) close relationships, 5) mental illness, 6) emotional distress, 7) acceptance of diagnosis, 8) clinician-patient relationship, 9) decision type, and 10) time. CONCLUSIONS: We identified a wide range of elements that may constitute patient readiness for SDM. Readiness might vary between and within patients. This variation may result from differences in patient- and decision-related characteristics. PRACTICE IMPLICATIONS: Clinicians should be aware that not all patients may be ready for SDM at a given moment and may need support to enhance their readiness.

Topics & Concepts

Decision aidsPatient participationDistressMedicineQualitative researchHealth professionalsHealth literacyPsychologyNursingMedical educationMEDLINEHealth careClinical psychologyAlternative medicineEconomicsPathologyEconomic growthLawSociologyPolitical scienceSocial sciencePatient-Provider Communication in HealthcareHealthcare Decision-Making and RestraintsClinical Reasoning and Diagnostic Skills