Guidance for Pediatric End-of-Life Care
Jennifer Linebarger, Victoria E. Johnson, Renee D. Boss, THE SECTION ON HOSPICE AND PALLIATIVE MEDICINE
Abstract
The final hours, days, and weeks in the life of a child or adolescent with serious illness are stressful for families, pediatricians, and other pediatric caregivers. This clinical report reviews essential elements of pediatric care for these patients and their families, establishing end-of-life care goals, anticipatory counseling about the dying process (expected signs or symptoms, code status, desired location of death), and engagement with palliative and hospice resources. This report also outlines postmortem tasks for the pediatric team, including staff debriefing and bereavement.
Topics & Concepts
MedicineDebriefingEnd-of-life carePalliative careFamily medicineNursingMedical educationChildhood Cancer Survivors' Quality of LifeEthics and Legal Issues in Pediatric HealthcarePalliative Care and End-of-Life Issues