Erythropoietic protoporphyria: time to prodrome, the warning signal to exit sun exposure without pain—a patient-reported outcome efficacy measure
Debby Wensink, Janneke G. Langendonk, Jessica Overbey, Manisha Balwani, E.J.E. Van Broekhoven, Margreet A. E. M. Wagenmakers, J. H. P. Wilson, Kristen Wheeden, Hetanshi Naik, Robert J. Desnick
Topics & Concepts
Erythropoietic protoporphyriaMedicineProdromeRetrospective cohort studyPediatricsSurgeryPsychiatryProtoporphyrinPsychosisPhotochemistryPorphyrinChemistryPorphyrin Metabolism and DisordersPhotodynamic Therapy Research StudiesMethemoglobinemia and Tumor Lysis Syndrome