Wearable-Triggered Ecological Momentary Assessments Are Feasible in People With Advanced Cancer and Their Family Caregivers: Feasibility Study from an Outpatient Palliative Care Clinic at a Cancer Center
Thilo Schuler, Claire Sisco King, Teresia Matsveru, Michael Back, Katherine Clark, Dylan Chin, Ruth Lilian, Blanca Gallego, Enrico Coiera, David C. Currow
Abstract
Background:Emerging digital health approaches could play a role in better personalized palliative care. Aim:We conducted a feasibility study testing wearable sensor (WS)-triggered ecological momentary assessments (EMAs) and electronic patient-reported outcomes in community palliative care with patient–caregiver dyads. Design:All wore consumer-grade WS for five weeks. Sensor-detected “stress” (heart rate variability algorithm) that passed individualized thresholds triggered a short smartphone survey. Daily sleep surveys, weekly symptom surveys (Integrated Palliative care Outcome Scale), and a poststudy experience survey were conducted. Setting/Participants:Fifteen dyads (n = 30) were recruited from an outpatient palliative care clinic for people with cancer. Results:Daytime sensor wear-time had 73% adherence. Participants perceived value in this support. Quantity and severity of “stress” events were higher in patients. Sleep disturbance was similar but for different reasons: patients (physical symptoms) and caregivers (worrying about the patient).