Children With Intellectual and Developmental Disabilities as Organ Transplantation Recipients
Mindy B. Statter, Garey Noritz, Robert Macauley, Gina Marie Geis, Naomi Laventhal, Douglas J. Opel, William R. Sexson, Dennis Z. Kuo, Susan Apkon, Timothy J. Brei, Lynn Davidson, Beth E. Davis, Kathryn A. Ellerbeck, Susan Hyman, Mary O’Connor Leppert, Christopher J. Stille, Larry Yin
Abstract
The demand for transplantable solid organs far exceeds the supply of deceased donor organs. Patient selection criteria are determined by individual transplant programs; given the scarcity of solid organs for transplant, allocation to those most likely to benefit takes into consideration both medical and psychosocial factors. Children with intellectual and developmental disabilities have historically been excluded as potential recipients of organ transplants. When a transplant is likely to provide significant health benefits, denying a transplant to otherwise eligible children with disabilities may constitute illegal and unjustified discrimination. Children with intellectual and developmental disabilities should not be excluded from the potential pool of recipients and should be referred for evaluation as recipients of solid organ transplants.