An international policy on returning genomic research results
Anna Lewis, Bartha Maria Knoppers, Robert C. Green
Abstract
The Global Alliance for Genomics and Health has approved a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body. The policy acknowledges the potential medical benefits to millions of individuals who are participating in genomics research. It ties the pace of implementation to each country's clinical standards, including for the return of secondary findings, and urges funders to set aside resources to support responsible return.
Topics & Concepts
PaceAllianceGenomicsMedicineScience policyGenomic medicinePolitical scienceComputational biologyBiologyPublic administrationGeneticsGenomeGeneGeodesyGeographyLawGenomics and Rare DiseasesEthics in Clinical ResearchHealth Systems, Economic Evaluations, Quality of Life