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Evidence-based consensus guidelines for the diagnosis and management of protoporphyria-related liver dysfunction in erythropoietic protoporphyria and X-linked protoporphyria

Cynthia Levy, Amy K. Dickey, Bruce Wang, Manish Thapar, Hetanshi Naik, Sioḃán Keel, Behnam Saberi, Simon W. Beaven, Sean Rudnick, Sarina B. Elmariah, Angelika Erwin, Robert J. Goddu, Karli Hedstrom, Rebecca Karp Leaf, Mohamed Kazamel, Marshall Mazepa, Lisa Philpotts, John G. Quigley, Haya S. Raef, Jonathan Ungar, Karl E. Anderson, Manisha Balwani

2023Hepatology20 citationsDOIOpen Access PDF

Abstract

Levy, Cynthia; Dickey, Amy K.; Wang, Bruce; Thapar, Manish; Naik, Hetanshi; Keel, Siobán B.; Saberi, Behnam; Beaven, Simon W.; Rudnick, Sean R.; Elmariah, Sarina B.; Erwin, Angelika L.; Goddu, Robert J.; Hedstrom, Karli; Leaf, Rebecca Karp; Kazamel, Mohamed; Mazepa, Marshall; Philpotts, Lisa Liang; Quigley, John; Raef, Haya; Ungar, Jonathan; Anderson, Karl E.; Balwani, Manisha; on behalf of the Porphyrias Consortium of the Rare Diseases Clinical Network. Author Information

Topics & Concepts

Erythropoietic protoporphyriaMedicineInternal medicineBiologyBiochemistryPorphyrinProtoporphyrinPorphyrin Metabolism and DisordersHeme Oxygenase-1 and Carbon MonoxideFolate and B Vitamins Research
Evidence-based consensus guidelines for the diagnosis and management of protoporphyria-related liver dysfunction in erythropoietic protoporphyria and X-linked protoporphyria | Litcius