Litcius/Paper detail

Online social support for cancer caregivers: alignment between requests and offers on CaringBridge

Rosaleen D. Bloom, Maija Reblin, Wen‐Ying Sylvia Chou, Susan L. Beck, Andrew Wilson, Lee Ellington

2020Journal of Psychosocial Oncology17 citationsDOI

Abstract

Objectives Exploring CaringBridge, we describe types of social support caregivers requested, types of social support offered, and the alignment between the two.Research approach A retrospective, longitudinal, descriptive approach.Sample Twenty public CaringBridge sites.Methodological approach The Social Support Behavior Code system was adapted and applied to cancer-caregiver journal entries (n = 389) and guestbook posts (n = 2,466) to identify types of support (emotional, esteem, informational, network, tangible, and no support requested/offered). Matches between requests and offers were examined.Findings Cancer caregivers requested different types of support from their guests, most commonly emotional support. However, in most posts, caregivers did not request any support (n = 238, 61.18%). Guests offered all support types, but predominately offered emotional support (n = 2,353, 95%). When support was requested, 66.67% of requests received a matched offer within 24 hours.Interpretation Social media platforms may provide all types of support to caregivers.

Topics & Concepts

Social supportEmotional supportPsychologySocial network (sociolinguistics)Social mediaSupport groupComputer scienceWorld Wide WebSocial psychologyPsychiatryCancer survivorship and careFamily Support in IllnessFamily and Patient Care in Intensive Care Units