Getting ready for real‐world use of electronic patient‐reported outcomes (ePROs) for patients with cancer: A National Comprehensive Cancer Network ePRO Workgroup paper
Jennifer R. Cracchiolo, Waddah Arafat, Ashish Atreja, Lauren B. Bruckner, Hamid Emamekhoo, Tricia Heinrichs, Ann C. Raldow, Jeffrey B. Smerage, Peter D. Stetson, Jessica Sugalski, Amyé Tevaarwerk
Abstract
Electronic patient‐reported outcome (ePRO) programs may offer advantages for patients with cancer, clinicians, health care systems, payors, and society in general; but developing and maintaining an ePRO program will require cancer centers to navigate defining meaningful problems, collecting ePROs, implementing action when those ePROs require intervention without over‐burdening clinicians, and monitoring the successes and failures of their ePRO programs. Physician informaticists from the National Comprehensive Cancer Network Electronic Health Record Advisory Group offer 10 guiding principles to consider when contemplating, building, or refining an ePRO program for patients with cancer.