The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature
Danielle E. McLaughlin, Ana Šemrov, Hounsh Munshi, Annika J. Patel, Jugnoo S. Rahi, Alana L. Grajewski, Balkan CGRN Study Group, Elena Bitrian, James D. Brandt, Ta Chen Chang, Tanuj Dada, Alan M. Delamater, Beth Edmunds, Sharon F. Freedman, Elizabeth Hodapp, Youngmee Kim
Abstract
We present a novel comprehensive literature review of studies of the psychosocial functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their caregivers. Our findings demonstrate variable study quality and approach, as well as inconsistent results relating to the association of glaucoma-specific factors and sociodemographic variables with measured PF and QoL. Future studies should focus on the development of culturally cognizant and standardized assessment tools, execution of multi-center longitudinal studies with global representation, evaluation of PF and QoL among siblings and childhood glaucoma providers, and implementation of interventions to improve patient and caregiver PF and QoL.