Parents' self-reported experiences and information needs related to acute pediatric asthma exacerbations: A mixed studies systematic review
Jocelyn Shulhan-Kilroy, Sarah A. Elliott, Shannon D. Scott, Lisa Hartling
Abstract
Objective: To systematically review the scientific literature examining parents' experiences and information needs for the management of their child's asthma exacerbations. Methods: We searched five databases for quantitative and qualitative studies in Canada and the United States from 2002 onwards. A convergent integrated approach and the Mixed Method Appraisal Tool were used to analyze and appraise the evidence, respectively. Results: We included 84 studies (27 quantitative, 54 qualitative, 3 mixed methods). Some parents lacked confidence in recognizing or managing exacerbations. A few parents were uncertain when and where to seek medical help. The main barrier to accessing care was cost. Impacts on parents included poor sleep, distress, and lifestyle disruptions. Parents felt they lacked information and wanted education on treatments and how to recognize and manage exacerbations via education sessions, written materials, community outreach and online resources. Conclusion: Improved education for parents may help reduce parents' stress, asthma-related morbidities for children and use of urgent health services. Innovation: The development of tailored interventions and knowledge translation strategies with input from target audiences (e.g. parents, health care providers) is necessary to meet their information needs and support adherence to clinical recommendations.