“The Whole Game is Changing and You’ve Got Hope”: Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy
Michelle A. Farrar, Kate A. Carey, Sarah-Grace Paguinto, Nadine A. Kasparian, Richard De Abreu Lourenço
Topics & Concepts
SMA*Health careContext (archaeology)Thematic analysisSpinal muscular atrophyPsychologyQuality of life (healthcare)Focus groupMedicineNursingQualitative researchBusinessSociologyPolitical sciencePaleontologyMarketingMathematicsSocial scienceLawBiologyCombinatoricsNeurogenetic and Muscular Disorders ResearchAdolescent and Pediatric HealthcareCardiomyopathy and Myosin Studies