Patient-reported outcomes and quality of life in recessive dystrophic epidermolysis bullosa: A global cross-sectional survey
V. Eng, D. Solis, Emily S. Gorell, Sara Choi, Jaron Nazaroff, Shufeng Li, Mark P. de Souza, Dédée F. Murrell, M. Peter Marinkovich, Jean Y. Tang
Topics & Concepts
MedicineEpidermolysis bullosaQuality of life (healthcare)Cross-sectional studyDermatologyDiseaseSeverity of illnessInternal medicinePathologyNursingSkin and Cellular Biology ResearchGenetic and rare skin diseases.Autoimmune Bullous Skin Diseases