Health-related quality of life of children treated for non-syndromic craniosynostosis
Marizela Kljajić, Giovanni Maltese, Peter Tarnow, Peter Sand, Lars Kölby
Abstract
parents estimated child HRQoL as higher than did the children). Children treated for CS have a generally average HRQoL, and neither CS type nor surgical method influenced HRQoL outcomes. Moreover, children and parents estimated HRQoL differently, suggesting the importance of using both self- and proxy reporting in patient-reported measures. HRQoL was strongly related to IQ and ABAS, indicating that the PedsQL can be used as a screening instrument to identify craniofacial patients in need of further psychological assessment.
Topics & Concepts
MedicineQuality of life (healthcare)CraniofacialHealth related quality of lifePediatricsPopulationCohortRetrospective cohort studyPhysical therapySurgeryInternal medicinePsychiatryDiseaseNursingEnvironmental healthCraniofacial Disorders and TreatmentsCleft Lip and Palate ResearchPrenatal Screening and Diagnostics