How patient-generated health data and patient-reported outcomes affect patient–clinician relationships: A systematic review
Ross J. Lordon, Sean P. Mikles, Laura Kneale, Heather L. Evans, Sean A. Munson, Uba Backonja, William B. Lober
Abstract
INTRODUCTION: Many patients use mobile devices to track health conditions by recording patient-generated health data. However, patients and clinicians may disagree how to use these data. OBJECTIVE: To systematically review the literature to identify how patient-generated health data and patient-reported outcomes collected outside of clinical settings can affect patient-clinician relationships within surgery and primary care. METHODS: Six research databases were queried for publications documenting the effect of patient-generated health data or patient-reported outcomes on patient-clinician relationships. We conducted thematic synthesis of the results of the included publications. RESULTS: Thirteen of the 3204 identified publications were included for synthesis. Three main themes were identified: patient-generated health data supported patient-clinician communication and health awareness, patients desired for their clinicians to be involved with their patient-generated health data, which clinicians had difficulty accommodating, and patient-generated health data platform features may support or hinder patient-clinician collaboration. CONCLUSION: Patient-generated health data and patient-reported outcomes may improve patient health awareness and communication with clinicians but may negatively affect patient-clinician relationships.