Health registries as research tools: a review of methodological key issues
Sissel Toft Sørensen, F. Kristensen, Frederikke Schønfeldt Troelsen, Morten Schmidt, Henrik Toft Sørensen
Abstract
Health registries provide opportunities for conducting large-scale, population-based studies, but attention must be devoted to their specific limitations. Herein, we describe potential limitations that may affect the validity of registry-based research. Our review includes descriptions of 1) populations, 2) variables, 3) medical coding systems for medical information and 4) selected key methodological challenges. Knowledge of such factors and epidemiological study designs in general is likely to increase the quality of registry-based research and reduce potential biases.
Topics & Concepts
MedicineCoding (social sciences)Data scienceScale (ratio)MEDLINEResearch designMedical researchAffect (linguistics)Key (lock)EpidemiologyManagement scienceComputer sciencePathologyComputer securityPsychologyQuantum mechanicsLawCommunicationPhysicsMathematicsEconomicsSocial scienceSociologyPolitical scienceStatisticsChronic Disease Management StrategiesMedical Coding and Health InformationPrimary Care and Health Outcomes