Epidemiology of the Global Fibrodysplasia Ossificans Progressiva (FOP) Community
Moira Liljesthröm, Robert J. Pignolo, Frederick S. Kaplan
Abstract
Background: Fibrodysplasia Ossificans Progressiva (FOP) is an ultrarare disease, but the geographic distribution and regional prevalence of the condition are unknown. This study was undertaken to determine the emerging global population of FOP patients who were associated with a regional, national or international FOP organization.
Topics & Concepts
Fibrodysplasia ossificans progressivaEpidemiologyMedicineMyositis ossificansPathologyHeterotopic ossificationSurgeryMedical Imaging and Pathology StudiesHeterotopic Ossification and Related ConditionsBone Tumor Diagnosis and Treatments