Optimizing the measurement of health‐related quality of life in adolescents and young adults with cancer
John M. Salsman, Suzanne C. Danhauer, Justin B. Moore, Mollie Rose Canzona, David Victorson, Brad Zebrack, Bryce B. Reeve
Abstract
To date, the health‐related quality of life experiences of adolescents and young adults (AYA) with cancer have been inconsistently and incompletely captured by existing patient‐reported outcome (PRO) measures. The National Institutes of Health Patient‐Reported Outcomes Measurement Information System (PROMIS) represents the state of the art for measurement science of PROs and provides an optimal approach for addressing these measurement challenges and catalyzing future patient‐centered research in AYA oncology.
Topics & Concepts
MedicineQuality of life (healthcare)CancerYoung adultGerontologyFamily medicinePatient-Reported Outcomes Measurement Information SystemClinical psychologyPsychometricsNursingComputerized adaptive testingInternal medicineChildhood Cancer Survivors' Quality of LifeCancer survivorship and careFamily Support in Illness