“No-one realises what we go through as Type 1s”: A qualitative photo-elicitation study on coping with diabetes
J.A. Nettleton, Amy Burton, Rachel Povey
Abstract
AIMS: Type 1 diabetes (T1D) has physical, emotional, and social consequences and little is known how adults cope with the condition long term. This research aimed to use a novel photo-elicitation technique to gain in-depth insight into the personal coping experiences of adults living with T1D. METHODS: In-depth photo elicitation interviews were employed to collect data and transcripts were analysed using thematic analysis. RESULTS: Participant-led data revealed an overarching theme of the relentlessness of the condition. Continuous self-management tasks infiltrated participants' lives and had a significant impact on coping experiences. A range of techniques and resources were used to cope including using alarms and reminders, diabetes technology, interpersonal relationships, supportive healthcare services and seeking a mind-body balance. CONCLUSIONS: Technology shows promise for easing the burden of the condition, expert-led online support would be of benefit, and peer support should be prioritised within interventions for adults with T1D.