International federation of genomic medicine databases using GA4GH standards
Adrian Thorogood, Heidi L. Rehm, Peter Goodhand, Angela Page, Yann Joly, Michael Baudis, Jordi Rambla, Arcadi Navarro, Tommi Nyrönen, Mikael Lindén, Edward S. Dove, Marc Fiume, Michael Brudno, Melissa Cline, Ewan Birney
Abstract
We promote a shared vision and guide for how and when to federate genomic and health-related data sharing, enabling connections and insights across independent, secure databases. The GA4GH encourages a federated approach wherein data providers have the mandate and resources to share, but where data cannot move for legal or technical reasons. We recommend a federated approach to connect national genomics initiatives into a global network and precision medicine resource.
Topics & Concepts
MandateData sharingGenomic medicineShared resourceIntellectual propertyResource (disambiguation)Precision medicineData scienceDatabaseComputer scienceWorld Wide WebKnowledge managementBusinessPolitical scienceMedicineComputer securityComputational biologyBiologyLawPathologyOperating systemComputer networkAlternative medicineCancer Genomics and DiagnosticsResearch Data Management PracticesEthics in Clinical Research