Exploring the motivations of research participants who chose not to learn medically actionable secondary genetic findings about themselves
Will Schupmann, Skye A. Miner, Haley K. Sullivan, Jamie R. Glover, Janet E. Hall, Shepherd H. Schurman, Benjamin E. Berkman
Topics & Concepts
Intervention (counseling)Informed consentMedicinePsychologyFamily medicineMedical educationSocial psychologyAlternative medicineNursingPathologyBRCA gene mutations in cancerEthics in Clinical ResearchGenomics and Rare Diseases