Rethinking Patient Engagement in Cancer Research
Anne L. R. Schuster, Heather Hampel, Electra D. Paskett, John F. P. Bridges
Abstract
Patient engagement is an increasingly prominent topic in cancer research. In the US, this is exemplified by the Cancer Moonshot, a national initiative funded in 2016 to accelerate scientific discoveries in cancer and which funds a federated network for ‘direct’ patient engagement [ 1 ]. Several research programs are part of the Cancer Moonshot’s federated network for direct patient engagement; they intend to promote access to cancer genomics research, especially among patients from underserved and historically underrepresented populations [ 2 ]. Despite this attention towards direct patient engagement, there is no explicit explanation of this non-standard term [ 3 ].