Patient Advocates and Researchers as Partners in Cancer Research: A Winning Combination
Laura Porter, Karyn A. Goodman, Josh Mailman, Wendy S. Garrett
Abstract
Inclusion of advocates as partners in research is now required by numerous international funding agencies. The role of advocates has expanded in recent years to include all areas of research, including basic cancer research, translational research, and clinical trial design and development. The involvement of advocates as partners in cancer research can be challenging for the advocate and for the researchers, but this collaboration is beneficial to all involved. Herein, we will define patient advocacy, explore advocate engagement, and share information on programs that train advocates and researchers to work together as partners.
Topics & Concepts
Inclusion (mineral)Translational researchPublic relationsWork (physics)Political scienceEngineering ethicsPatient advocacyMedicinePsychologyMEDLINEEngineeringSocial psychologyPathologyLawMechanical engineeringMental Health and Patient InvolvementEthics in Clinical ResearchEmpathy and Medical Education