Privacy Protection for Open Sharing of Psychiatric and Behavioral Research Data: Ethical Considerations and Recommendations
Yundi Zhang, Siyuan Fan, Hui Hui, Ning Zhang, Jing Li, Liping Liao, Chaofu Ke, Dan Zhang, Shihong Su, Zhiqiang Song, Leo Yu Zhang, Qing Du, Long Liu, Lan Wang, Lijie Yang, Jia Li, Li Da Xu, Shiqi Xiao, Lei Shi, Xiang Xiao, Wenzhao Wang, Niuniu Sun, Qilian He, Ran Hao, Wu Ju, Zhiqiang Tian, Yanting Lou, Qiang Yao, Wai‐Kit Ming, Feng Jiang, Xiaoming Zhou, Mingxu Wang, Xinying Sun, Yibo Wu, on behalf of Behavioral Epidemiology Education Working Commission of CMEA
Abstract
Data sharing within psychiatric and behavioral research represents a novel application of ethical principles in practice; however, it suffers from a dearth of practical experience and established ethical norms. In this study, we comprehensively examined the ethical considerations surrounding the acquisition, management, sharing, and utilization of such data. We graded sensitive data and suggest ethical standards for privacy protection based on varying levels of data sensitivity. The objective of this study is to foster orderly and standardized open sharing of psychiatric and behavioral research data, thereby advancing the development and progress of related academic disciplines in China. This Chinese expert consensus has been registered on the International Guide Registration platform (Registration Number: PREPARE-2024CN412).