Children and young people's experiences of living with rare diseases: An integrative review
Suja Somanadhan, Ryan O'Donnell, Shirley Bracken, Sandra McNulty, Alison Sweeney, Doris O'Toole, Yvonne Rogers, Caroline Flynn, Atif Awan, Mona Baker, Aimee O‘Neill, Helen McAneney, Lisa Gibbs, Philip Larkin, Thilo Kroll
Topics & Concepts
PsycINFOCINAHLMedicineCoping (psychology)Rare diseaseGerontologySocial connectednessPsychological resiliencePsychologyDiseaseMEDLINEDevelopmental psychologyClinical psychologyPsychiatryPsychological interventionPsychotherapistPathologyLawPolitical scienceGenomics and Rare DiseasesHealth Systems, Economic Evaluations, Quality of LifeBRCA gene mutations in cancer