Developing supportive local communities: Perspectives from people with dementia and caregivers participating in the IDEAL programme
Catherine Quinn, Nicola Hart, Catherine Henderson, Rachael Litherland, James Pickett, Linda Clare
Abstract
Communities play an important role in supporting people living with dementia. The aim of this study was to explore what could be changed in the local community to enable those with dementia to live well. People with dementia and carers taking part in the IDEAL programme responded to open-ended questions. Responses from 1,172 people with dementia and 702 caregivers were analyzed using thematic analysis. Four themes were identified: raising awareness, improving access to support services, providing social events and activities, and supporting people to engage in the community. These highlight the role of individuals, resources and the environment in supporting those with dementia. Longer-term investment in services is needed to underpin dementia-inclusive communities.