African genomic data sharing and the struggle for equitable benefit
Michèle Ramsay
Abstract
Genomic and related health data from Africa remain scarce and are extremely valuable, due to an abundance of variants often rare or absent in the rest of the world. Insights from such data will benefit global populations, but will Africa be neglected by limited access to affordable benefits resulting from research that uses their data?
Topics & Concepts
Data sharingRest (music)Data scienceDevelopment economicsBusinessGeographyEconomic growthComputer scienceEconomicsMedicinePathologyAlternative medicineCardiologyGenomics and Rare DiseasesEthics in Clinical ResearchGenetics, Bioinformatics, and Biomedical Research