Advocacy in Action: International Patient Group Improves Hereditary Angioedema Diagnosis and Care Across the Asia–Pacific
Jane C. Y. Wong, Clara Tsui, Kristie C. W. Lao, Jovilia Abong, Adli Ali, Dharmagat Bhattarai, Michihiro Hide, Ankur Kumar Jindal, A. M. Jordan, Hye‐Ryun Kang, Constance H. Katelaris, Narissara Suratannon, Sze‐Chin Tan, Yong‐Hao Lim, Deborah Corcoran, Fiona Wardman, Henrik Balle Boysen, Anthony J. Castaldo, Philip H. Li
Abstract
This study demonstrates that patient advocacy groups significantly enhance medication availability and improve diagnosis of hereditary angioedema (HAE), particularly in emerging economies within the Asia-Pacific region. This study supports integrating patient advocacy group involvement into management guidelines, emphasising their role in improving access to diagnostics and treatment for HAE.
Topics & Concepts
Hereditary angioedemaEthnic groupMedicineC1-inhibitorAsia pacificPopulationFamily medicineAngioedemaPolitical scienceEnvironmental healthBusinessInternational tradeImmunologyLawCoagulation, Bradykinin, Polyphosphates, and AngioedemaSynthesis and Catalytic ReactionsHemophilia Treatment and Research